FALLS CHURCH, Va. – A Falls Church household simply obtained two extremely uncommon medical diagnoses, and are asking individuals throughout the DMV to step ahead and assist save their lives.
The backstory:
Lucca Thompson, 2, and Noelle Thompson, 4, had been each identified in early Could with Chediak-Higashi Syndrome. It’s an exceptionally uncommon genetic dysfunction that may be deadly if it’s not correctly handled. It’s so uncommon the NIH says there are fewer than 500 documented circumstances worldwide.
“I get up each day and I am like, how is that this our life?” their mother, Kiya Thompson mentioned. “How did we find yourself right here? How is it that each our kids are struggling with this?”
Dig deeper:
The Thompsons had been not too long ago knowledgeable their kids now want pressing, life-saving blood stem cell transplants.
Lucca appears to have some matches within the worldwide NMDP registry, however docs not too long ago instructed the Thompsons of the 41,000,000 registered donors, there’s not a single match for Noelle.
“I had no thought of my capability for love till I had my children,” their father Justin mentioned. “And the information that I might lose one in all them or each of them is completely devastating.”
Kiya and Justin instructed FOX 5 they suffered three miscarriages, and that their two kids had been their miracle infants.
“We felt like for the primary time we felt like our household was full,” Kiya cried. “It was our second of happiness and now it is simply uncertainty and worry.”
What you are able to do:
The Thompsons are actually urgently asking individuals throughout the DMV to register as doable donors and discover their daughter a life-saving match.
“We’ll hold attempting so long as we have to,” Justin mentioned.
Registering with NMDP is a straightforward course of; all it’s a must to do is a cheek swab. Medical consultants additionally say donation is much much less concerned than individuals anticipate. You may be taught extra and be a part of the registry with NMDP right here.
